Author Topic: Our sister, mommydi needs our prayers  (Read 1218 times)

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Offline Rella

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Our sister, mommydi needs our prayers
« on: Fri Jun 25, 2021 - 13:44:04 »
She is  having a major medical issue and has to get an emergency transfusion.

Today.

 ::prayinghard:: ::prayinghard:: ::prayinghard::

Offline johntwayne

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Re: Our sister, mommydi needs our prayers
« Reply #1 on: Fri Jun 25, 2021 - 16:53:40 »
praying

Offline RB

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Re: Our sister, mommydi needs our prayers
« Reply #2 on: Sat Jun 26, 2021 - 03:19:43 »
That broke my heart ::cryingtears:: If anyone knows please PM me.   ::prayinghard::  ::prayinghard::

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Re: Our sister, mommydi needs our prayers
« Reply #2 on: Sat Jun 26, 2021 - 03:19:43 »

Offline Texas Conservative

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Re: Our sister, mommydi needs our prayers
« Reply #3 on: Sat Jun 26, 2021 - 08:08:30 »
Praying.  Let us know if you hear anything

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Re: Our sister, mommydi needs our prayers
« Reply #3 on: Sat Jun 26, 2021 - 08:08:30 »
Pinterest: GraceCentered.com

Offline Alan

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Re: Our sister, mommydi needs our prayers
« Reply #4 on: Sat Jun 26, 2021 - 09:18:49 »
Praying, hope all goes well.

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Re: Our sister, mommydi needs our prayers
« Reply #4 on: Sat Jun 26, 2021 - 09:18:49 »



Offline Jaime

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Re: Our sister, mommydi needs our prayers
« Reply #5 on: Sat Jun 26, 2021 - 12:01:06 »
I am praying

Offline mommydi

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Re: Our sister, mommydi needs our prayers
« Reply #6 on: Sat Jun 26, 2021 - 19:38:38 »
Thank you sister Rella for the support and prayers and thank you all for your prayers and concern.

I'll try to make a long story short-

I've been getting more and more exhausted - unreal levels of exhaustion. I kept blowing it off and trying to push through it. When I went to the doctor for my sprained ankle, I told him about the severe fatigue, so he did lab work. He called yesterday and said a hematologist would be calling me and explained to me how severe the anemia is - critical. He said, "You need blood - TODAY."  So I was admitted yesterday afternoon where they started transfusions (it took three bags of blood to get me to a level good enough to come home this afternoon). Monday, I start iron infusion therapy as an outpatient, and start other tests to find the source of the anemia.

Some thoughts about blood transfusions-

I've never had one, but it was a learning experience.
First, I'm so thankful that these three people donated their blood. OTOH, germ phobic that I am, it's a strange feeling watching the blood of strangers drip into my veins. I'm also wondering if any of the donors had covid antibodies in their blood and would that transfer to me??  ::shrug::

Something else-

It takes four hours to receive one transfusion. They have to start slow because even though the donor blood is typed and matched, it's still not my own blood and there's a possibility my body may want to reject it. The very nice nurses checked my vitals every 15 minutes during the transfusions and watched for signs of rejection. I had two bags of blood yesterday (8 hours), then they checked my blood and knew I needed more, so I got another bag (4 hours) this morning. After that, another check and they told me it was safe to go home and to start outpatient therapy Monday.

Anyway - thank you all for the love and prayers, and thanks to all who donate blood.


Offline RB

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Re: Our sister, mommydi needs our prayers
« Reply #7 on: Sun Jun 27, 2021 - 03:58:30 »
Thank you sister Rella for the support and prayers and thank you all for your prayers and concern.
Well, there's our dear sister~we want you to have a very quick recovery and with your fighting spirit and above all, God's mercy to you we expect to see you back very soon.

I do not like to think that someone's else blood is in my veins, BUT, they monitor blood donated much better than in the past. When I have a surgery that may require blood, I go first and donate my own to be there waiting for me.

We LOVE you and will continue be praying for you~your brother~RB

Online DaveW

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Re: Our sister, mommydi needs our prayers
« Reply #8 on: Mon Jun 28, 2021 - 05:25:49 »
So glad they caught this and were able to respond in time.

I had to have transfusions right when the AIDS epidemic was peaking and the 2nd most frequent cause of the infection was from blood transfusions. (mid 1980s).  Serious car crash.  I think I got either 6 or 8 units of blood BEFORE going into surgery. 

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Re: Our sister, mommydi needs our prayers
« Reply #8 on: Mon Jun 28, 2021 - 05:25:49 »

Offline pppp

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Re: Our sister, mommydi needs our prayers
« Reply #9 on: Sat Jul 10, 2021 - 09:20:58 »
 ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard::

Offline mommydi

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Re: Our sister, mommydi needs our prayers
« Reply #10 on: Sat Jul 10, 2021 - 20:26:05 »
::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard::

Thank you so much!

I'm still not out of the woods and facing more testing.

Offline pppp

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Re: Our sister, mommydi needs our prayers
« Reply #11 on: Wed Jul 14, 2021 - 04:25:49 »
Dear Sister,
Praying for you,
May God help you & give you healing & health,
 ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard::

For I am the Lord who heals you.” – Exodus 15:26
“‘If you can’?” said Jesus. “Everything is possible for one who believes.”
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Online DaveW

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Re: Our sister, mommydi needs our prayers
« Reply #12 on: Wed Jul 14, 2021 - 04:57:55 »
Thank you so much!
I'm still not out of the woods and facing more testing.
Please keep us informed so we can pray. 

Offline mommydi

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Re: Our sister, mommydi needs our prayers
« Reply #13 on: Wed Jul 14, 2021 - 06:54:16 »
Thank you.


Well, I never got to start my iron infusions because my hospital appointed hematologist got the request wrong - and put false information on the request - and my insurance company denied the request for iron infusions. This will sound racist and bigoted to some, but he's from India, graduated medical school in India, hasn't been here that long, and has severe communication problems with English speaking people. I received a copy of the treatment request from my insurance company, and the amount of misinformation the hematologist put on that request form was unreal. No wonder they rejected his treatment request.
There were several other problems with him, including getting visibly angry with me for asking to use my own gastroenterologist instead of the one he wanted to refer me to. 
My primary care physician was shocked by all this happening and is referring me to another hematologist who is supposed to call today.

Meanwhile-

I went to my own gastro doctor that I love, and he said he doesn't think (from my lab work and symptoms) that I have internal bleeding, but I have lost the ability to absorb iron, but will go in and look for bleeding anyway to rule that out. He gave me examples of various situations that can cause a person to stop absorbing iron.

I also took another set of bloodwork labs yesterday and they show my numbers are dropping again since the transfusions - which I pretty much knew because I'm getting weaker again.

So that's probably more than you wanted to know, Dave. Even though I'm lacking iron and energy, I'm not lacking any words.  ::noworries::


Online DaveW

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Re: Our sister, mommydi needs our prayers
« Reply #14 on: Wed Jul 14, 2021 - 08:07:03 »
Thanks.  I will continue to pray.

Offline pppp

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Re: Our sister, mommydi needs our prayers
« Reply #15 on: Fri Jul 16, 2021 - 13:57:34 »
 ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard::

Offline mommydi

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Re: Our sister, mommydi needs our prayers
« Reply #16 on: Wed Jul 28, 2021 - 12:31:35 »
Thanks, everyone!

I spent the morning getting an endoscopy and colonoscopy looking for bleeding in my gastro tract - but he said he found no bleeding or areas of recent bleeds. So now he's ordering the pill camera thingy, where you swallow a pill that has a camera in it and they can see other areas of the gastro tract that can't be reached with the other two tests. He says he honestly thinks I'm not losing blood, but just one of these people who has lost their ability to absorb iron and will have to get iron infusions from now on. Guess it could be worse!

Back to the hematologist!




Offline 3 Resurrections

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Re: Our sister, mommydi needs our prayers
« Reply #17 on: Wed Jul 28, 2021 - 16:20:49 »
Praying that your doctors can find a definitive answer to whatever is causing the anemia...and quickly. 

Your struggle with the iron absorption issue struck a chord with me, since a woman in our family is dealing with the same unexplainable inability to absorb iron.  She has already had a couple infusion sessions, ($8,100 each, which her post-deductible insurance covered completely), and will go back in a couple months to check her levels again.  The iron infusion she used is a newer type called "Injectafer", and she says that the Injectafer website offers coupons that help with the cost if insurance does not cover it all. 

Meantime, besides the iron pills, she is pumping up her diet with naturally iron-rich smoothies, to make sure that diet is not the issue.   GI doctor visit also in a couple weeks, to check on that angle.  So I will be checking in here on your prayer request as often as you post, mommydi, to see how you are dealing with this same problem as time progresses.  Blessings!   

Offline mommydi

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Re: Our sister, mommydi needs our prayers
« Reply #18 on: Wed Jul 28, 2021 - 18:23:24 »
Praying that your doctors can find a definitive answer to whatever is causing the anemia...and quickly. 



Thank you so much, 3 Resurrections!

I'm so sorry to hear about your family member with the same problem, and will be praying for her.

Quote
She has already had a couple infusion sessions, ($8,100 each, which her post-deductible insurance covered completely), and will go back in a couple months to check her levels again. 

I've heard the iron infusions are extremely expensive and one reason insurance companies drag their feet about approving the treatment. Some countries have iron infusion bars where people can get iron infusion treatments on their own - which could be dangerous if not monitored properly.


Quote
The iron infusion she used is a newer type called "Injectafer", and she says that the Injectafer website offers coupons that help with the cost if insurance does not cover it all. 

Thanks for that tip! Did she have any side effects from the infusion? I'm seeing some people have very little problems with them, but others have such bad reactions, they end up hospitalized.

Quote
Meantime,
besides the iron pills, she is pumping up her diet with naturally iron-rich smoothies, to make sure that diet is not the issue.
 

That's what I'm doing - iron pills and upping my iron rich foods. Three days a week, I'm eating liver and chasing it with a vitamin C, since C helps with iron absorption. I also eliminated all dairy until I get my numbers up since dairy blocks iron absorption.


Quote
GI doctor visit also in a couple weeks, to check on that angle.  So I will be checking in here on your prayer request as often as you post, mommydi, to see how you are dealing with this same problem as time progresses.  Blessings!

You are so kind, thank you. Please keep me updated on her progress and tests, if you don't mind.

Offline 3 Resurrections

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Re: Our sister, mommydi needs our prayers
« Reply #19 on: Thu Jul 29, 2021 - 00:04:33 »
Sent you a private message, mommydi...

Offline pppp

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Re: Our sister, mommydi needs our prayers
« Reply #20 on: Sat Jul 31, 2021 - 17:08:27 »
 ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard:: ::prayinghard::