Author Topic: So what are your babies disabilities?  (Read 2807 times)

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Offline renee-1

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So what are your babies disabilities?
« on: Wed May 06, 2009 - 19:17:40 »
Hello all just a little get to know you thing.

My Cecil was born with Tetralogy of Fallot which is a congenital heart defect. He had closed heart surgery at one month old his right lung collasped during the surgery they was able to get it back but there is some damage to it. In his "good lung" he has asthma. He had open heart surgery at 11 months and a cardiac cath just 3 weeks ago. He may possibly need another open heart and another cath in the future.

Share your little one with us.

Offline Hehealedme

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Re: So what are your babies disabilities?
« Reply #1 on: Wed May 06, 2009 - 22:20:29 »
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« Last Edit: Mon Dec 08, 2014 - 09:25:10 by Hehealedme »

Offline renee-1

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Re: So what are your babies disabilities?
« Reply #2 on: Wed May 06, 2009 - 22:56:27 »
You just put tears in my eyes. Cause I was born with spina bifida mylomeningocele. Yes dear he is waiting for you (his momma). And being held by our Lord (I like to think so anyway).
You wouldn't think there was anything wrong with my sweets snuggums. Less at any chance you listen to his heart and hear his murmor which sounds a lot like a waterfall. I've though that that murmor sound is a good thing as it shows he's not in heart failure. Or you could look at his chest and see the scar.

son of God

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Re: So what are your babies disabilities?
« Reply #3 on: Mon Oct 05, 2009 - 02:41:35 »
My 9 year son old has Downs.  Can't talk worth a hoot.  Knows his letters and numbers, and knows many words by sight, not phonics, which is actually an advantage.  Cool.  When 2, he could run the computer, save things, call up things, etc..  Thought I lost my wife when he was born and made the list of all to call, etc., but God surprised me!  Cool.

Worked with adult Downs, austistics, kids whose parents poured gas on them while they slept and light the match, etc.  Have seen kids burn to death.  Nasty stuff.

Have patience for those with disabilites, but little to none with people who flake out but are normal.  Learning in that one.

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Re: So what are your babies disabilities?
« Reply #3 on: Mon Oct 05, 2009 - 02:41:35 »

 

     
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